A Piece of My Story. ~ Xzaviar Aune

Hello, everyone. For those of you who don’t know me, my name is Xzaviar Aune. I am a 17 year old kid from Winona, MN. I want to take some time to share a piece of my story; where I started, how I got where I am a now, and where I hope to be in the future.

First I would like to rewind to my beginning for just a moment. I was born on Oct 20th, 1997, to Marshall and Tabetha. They were overjoyed with my arrival, but soon realized they and the doctors would be fighting for my life.

I was born with Persistent Pulmonary Hypertension (PPHN,) which is a life threatening illness. After overcoming that, my heart started having problems. I was then diagnosed with holes in my heart, which were called Atrial Septal Defect (or ASD,) then on top of that I had Supraventricular Tachycardia (SVT,) big words for such a little guy. Crazy right?

The doctors took all measures necessary, from strong medications to  a few heart procedures. I was in the hospital for months while my heart began to heal. The next three years of my life were spent in and out of the hospital. Then, shortly after I turned three, I got all the monitors off and medication was done, and my parents, with caution, were able to bring me home.

Then my life could begin.

Growing up I was able to be active in many sports, including boxing (which I did for about a year and a half,) wrestling (which I did for seven years,) and football (which is also a great passion of mine,) for nine years.

All of these things that I enjoyed doing came to a stop because, in the Winter of 2012, I went into heart failure. My SVT had come back after being ill with bad cold. This was pretty scary, and devastating to me. All of the things that I liked to do — I couldn’t do them anymore.

I had to wear a device to monitor my heart 24/7 for 30 days. The doctors, based on all of my monitored results, decided they would operate on my heart. May 17th of 2012 I went in and had a procedure done to once again mend my heart. They had to make 32 different freeze points in my heart to make it fire correctly. I was at that time diagnosed with having not only  Typical AVNRT [another form of tachycardia] but Atypical AVNRT as well, which we were told is very rare so that is why they had to freeze so many fibers.

My heart was again on the mend, but now new things were happening, and I was feeling ill and light headed.

I was diagnosed with Autonomic Dysfunction. I was having a hard time with my blood pressure, and it would drop extremely low, which would make me dizzy and feel like I was going to faint every time I changed positions. With the great Doctors at Mayo, we were able to find good medication to help control these symptoms.

Over time I had worked hard to keep my heart in shape, to maintain my blood pressure and try to enjoy some other things. I was eventually given permission by doctors to play football again. Whoo hoo, this is great news!

However, would my heart go into failure again?